Transcript
This video is based on the personal experience of families with boys taking emflaza® (deflazacort). Please speak to a healthcare provider before making treatment decisions.
Here & Now With the Losapios: A DMD Story
DMD=Duchenne Muscular Dystrophy
Mike: I'm Mike LoSapio and I have two awesome little guys that have Duchenne muscular dystrophy. Mikey, he's nine and Reid, he's seven. Mikey and Reid are absolutely two peas in a pod but just two different peas within that pod. One of the mantras that I have kind of developed for life is to have a grateful attitude.
WHAT TREATMENT OPTIONS DID YOU CONSIDER WITH YOUR DOCTORS?
Mike: While discussing different options with our neurologist, EMFLAZA came up. That was, at the time, the only approved drug for Duchenne and that was something that I really wanted to get Michael on immediately. With Reid, we looked into starting treatment for EMFLAZA shortly after. I saw really great results with Michael on EMFLAZA and I really wanted to kind of keep Reid on that same course.
Individual results vary. This is the experience of one patient.
WHAT WAS THE PROCESS AS YOU WERE GETTING STARTED?
Mike: I contacted the insurance company after our first denial and said I don't want my son taking an off-label drug. I want the one that is on-label for Duchenne, followed up by our doctor writing a letter and it only took one denial and it got approved after that.
WHERE DO YOU SEEK SUPPORT WHILE MAKING TREATMENT DECISIONS?
Mike: Seeking support for treatment decisions, talking to our neurologist is a big thing. They're our regular doctor, but also the Duchenne community is really strong. PTC has been an amazing asset as well, with their PTC Cares™ and helping out as much as possible.
MAKING THE MOST OF THE HERE & NOW
Mike: Having that spirit of gratitude has really helped me to kind of harness in just those little things. A funny joke by Reid, a little smile by Michael, and it just makes the world to me.
ACTING LIKE A FAMILY BECAUSE THEY CAN
ASK YOUR DOCTOR IF EMFLAZA CAN HELP